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My Strained Journey Through Diagnosis in The Worst Country in The World - Divergent Parenting
discuss.divergentparenting.spaceHi all, my name is G, a soon-to-be 20-year-old who’s been battling the chaos in
my mind since, well, as long as I can remember myself really, but it really all
starts at 16 - the wonderful yet horrific time where you become more conscious
and aware than ever. I’ve managed to thread together the fragments of my
journey, considering I repress those memories, of the last four years of my
life, living with an unaddressed ADHD and thought it might resonate with some of
you here, and maybe help those who are going through a tough time to feel less
alone. More so just to get -someone- to listen to my story. It was around my
16th birthday, the time when the world feels so vast yet so constrained and
confusing, that I stumbled upon random ADHD memes and symptoms online. I’ve
always known of ADHD as being some widely “popular” disorder, but never knew
what it actually was. The more I scrolled, though, the more I saw my daily
struggles encapsulated in those posts. It was horrifying and captivating at the
same time. The self-recognition moment shook me, and rocket-launched me into
figuring it out. Could it be? An explanation? Am I not just lazy? I don’t feel
lazy! I try my hardest, but it’s not enough! Why!? After immersing myself in
information about ADHD for hours, turned into days, which turned into months, at
last, I summoned the courage to approach my mom, who was so supportive and
caring, it’s like she knew. Surprise, she did. To my shock, she revealed that I
was diagnosed with hyperkinetic syndrome (another name for ADHD) as a child.
This is it! I’m on the right track! I’m not insane! Living in a country that’s
currently aptly called one of the worst places on earth (to put it lightly), and
rightfully hated by everyone with a brain, we recognized the mountainous journey
through the nonexistent mental healthcare system that we were about to undertake
to get the help I needed. All the while hindered by a condition that turned
every task, from even the most basic one like brushing teeth, to choosing what
the hell to do with my life, into equally herculean and seemingly impossible
efforts, I was sinking under the weight of this discovery. It was horrifying,
yet, I was naive and hopeful, reading on stories of people from better places on
earth who can get that help. It’s possible, I thought. Surely, if I try, I
thought. Summing up my courage, we plunged into the battle. Over a year long
treacherous journey had me in front of something like 12-13 physicians.
Neurologists, psychiatrists, psychologists, physicians, threading through a
health system that’s as incompetent as it is free. My school psychologist - the
first little stepping stone was my ray of hope, pointing me towards avenues of
professional help, unable to do more due to her position’s limitations. But then
it rolled into a giant shitball, like a snowball from Mt. Everest. Every doctor
visit felt like walking a plank - I’ve never done anything like this. Revealing
that I’ve researched my symptoms online, and suggesting that I was struggling
with ADHD, would often trigger a dismissive and downright awful response from
doctors. The atrocious claim that because I’ve sought help at all meant I didn’t
have ADHD was a prevalent sentiment. And the nonchalant remark from a senior
physician that belittled my struggle comparing it to not battling a fever was a
blow for me. But I carried on. More than once, my symptoms were either ignored
or misinterpreted. I remember walking into a session hoping for help with
concentration issues and ended up with a bipolar diagnosis stacked on me within
the hour, since apparently “my mood changes because I fail to do tasks” is
enough for that. I do not have bipolar disorder. The subsequent medication for
it left me very sedated, docile, and heavily disrupted my sleep and energy
levels - side effects that linger still to this very day. Catching COVID
certainly didn’t help. The ultimate breach of trust in the entire healthcare
system, though, came from an approximately 50-60 years old doctor. Whom I
personally looked up, recruited, asked for help, and he was initially open. His
royal shartiness, instead of empathizing with me, or addressing literally
anything I’ve said to him during the session, turned it into an unsolicited rant
about the old ways of brute force “nurturing” of the Soviet Union army. Truly a
despicable act. Telling me I simply don’t know how to live, that the fact i have
any ambitions or do anything for them is an indicator I don’t have ADHD, saying
I’m completely healthy, not addressing a single one point of my concerns. A
boiling point that led to a harsh exit with me telling him to burn in hell and
an anxiety attack in a bright summer day - the scariest, yet somehow comically
ironic moment of my life. I remember feeling bad in the midst of the storm that
I left my mom with that piece of shit. He told her after I stormed out that it’s
simply “hormonal” and it will pass. Spoiler alert: it did not. Later even the
hospital administrator / head doctor who was present called and apologized,
saying we should try another opinion. But I was done. To this day from this
interaction I fear doctors like fire, and that will probably remain for the rest
of my life. I left out a lot of stuff, like the months of placebo, unproven and
generally unsuitable medications, how much it took a toll on my world view and
general life motivation, talks of suicide in the last encounter with a doctor,
being forced to come out for a “questionnaire”, et cetera. I could go on, and
would love to, but I feel like no one would read something like that. I’d love
to continue in the comments though, after all we all have something in common.
Unfortunately, my journey doesn’t have a satisfying resolution yet. I’m now in a
different country where the acceptance and accessibility to ADHD diagnosis and
medication are a fair bit better, but I still can’t afford the process. My
struggles with ADHD have receded to the background amidst the tsunami of mundane
survival requirements, studying, chores, all of which I know you all know the
crushing struggle of all too well (wow, what a sentence!). The necessity of
immediate tasks creates a transient motivation (and not in the good sense of the
word, more like urgency), but the resulting mental toll is just so much to bear.
Too much. It’s summer right now, but when I was studying, Every. Single. Week. I
plummeted into depression head first due to just not being able to live a normal
life. I dream about a day when I can pursue a formal diagnosis and actual help,
hopefully with some surplus money which I don’t have, and maybe secure the
medication I need. Maybe someday in the future I will lead a “normal” life. But
for now, as I pen down my journey so far, I feel largely directionless but with
a spark of hope that I won’t feel this lost forever. The road ahead is uncertain
and feels impossible and inaccessible. But I still have a glimmer of hope.
Sharing this with you all feels cathartic and makes me feel less alone. Hoping
for better days. P.S. no this is not the States. There, at least if you’re born
filthy rich there you can get it, and the proven meds are legal. Not back home,
not for me.
cross-posted from: https://pawb.social/post/1160724
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